This blog centers on my eldest
son and our journey through the madness that has become our parenting journey
with him. I realized a long time ago
that support and resources for children with special needs, mental illness and
a combination of both is almost non-existent in so many ways, the resources and
help made available is either incredibly expensive (private sector) or requires
long waiting lists and very little by way of finding a doctor/specialist whom
you and your child can trust and depend on (government), in the end you are not
guaranteed the help you or your child may need and most of the time there is
absolutely no support or guidance.
Up until now we have navigated
much of our journey alone, we have struggled severely to find the help that we
have needed and thus have felt like we must be the only family dealing with
these issues, this is not the case, I know this is not the case but where are
these voices, where are these people? Where are these families, these children?
The truth is that I think more often than not we all feel like we are in it
alone, many of us are embarrassed, shunned, led to believe that we have no
right to services, resources, help or support and quite frankly I have had
enough!
I don’t want to stay quiet
anymore, I refuse to allow other families and children to feel the way we do.
For a period of time last year I helped run a special needs school and that
experience was both the most heart-breaking and enlightening experience of my
life, at that point I knew in my heart that I wanted to be a voice for others,
that I wanted to do more and create a platform for those who feel alone in a
path not so unlike our own, I have seen and supported families who are broken,
families with nowhere to turn families who are desperate for answers and
although we have finally reached a point in our journey where we have- answers
as devastating as they may be, I know in my heart that our journey, our pain and
our triumphs are meant for more than just our own insight and awareness.
I have met many incredible
people, children and families along our journey and my hope is that I can do
them justice in being a voice for those who have been silent in this regard, if
I can help even one person navigate their journey or lend them the support that
they deserve then I will have served my hearts purpose.
I invite you to follow us as we navigate this journey, I invite to share your experiences or to just seek comfort in the fact that you are not alone, help me be the voice where there is silence.
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